Have you ever felt like the Internet holds a vast amount of both the scariest and most wonderful information all at the same time? Do you feel like when you’re searching for “good” news, hope or inspiration the only things you find are stories of darkness or bad news? Well, there is a brand new place to share inspiration, hope and great stories from people just like you and me – who live with IBD. This website also has a collection of trusted resources to visit for the most up-to-date information on Crohn’s disease and ulcerative colitis.
It’s called Empowered by Kids! Here is the link: http://empoweredbykids.com so you can check it out if you haven’t already. On it you’ll find stories and videos by kids and parents from around the country and the UK sharing their amazing IBD journeys (my story was just featured on December 8th). These bring to light the many wonderful things these families have done to make a difference in the lives of others with IBD. Empowered by Kids has given these patients and family members a place to share their voices, and to share the many ways we all can help make things better and easier for others with IBD.
Think of the number of people that could be impacted by each story! Wow, doesn’t that make you want to send your story in? Wait, there’s more! Some of the stories on this site were collected and printed in a book especially for newly diagnosed IBD patients and families – to remind them that they are not alone. The Book of Hope is now being given out at ImproveCareNow centers. It’s all part of the amazing work happening within the ImproveCareNow Network. Together, we are making a difference for all patients and families impacted by IBD.
If you know someone who would like to share their story on Empowered by Kids, here’s the link to the online contact form http://empoweredbykids.com/our-mission/contacts. They can also send an email to firstname.lastname@example.org and share their story that way too.
[Editor’s note: Tyler Moon is currently a C3N Project Patient Scholar and member of the ImproveCareNow Patient Advisory Council. He asked us to share this post on his behalf.]