A record seven gutsy patient advocates in ICN’s Patient Advisory Council – PAC, “pack” – attended the Community Conference. We tweeted live at #ICNCC15s all the way through – so please check out our feed!!
The Patient Voice is already strong on Twitter. For a week leading up to the conference, Alex, Bianca, Christian, Isabelle, Jennie, Randa, and I tweeted once a day to provide a glimpse into how IBD factors (or does not factor, in some cases) into our days. We made special reference to the key drivers of remission took center stage at the Community Conference and form the foundation of ImproveCareNow’s work:
Jennie described challenges that impede her access to and communication with her doctor.
Bianca shared how less-than-optimal nutritional intake has impacted her – and made it difficult for her to grow at the same rate as her peers.
We hope you’ll join the conversation on Twitter now and in the future!