Life With Colitis: Mason’s Story

When I was first told I had colitis I was only 7 years old. I had really bad cramps and started pooping blood. We went to the doctor and he checked me out. They didn’t really know what was wrong at first and we had to go back to the doctor again until my mom insisted that something was really wrong. They took some blood. After that, they put me in a special room where he put an I.V. in and covered it with what felt like a cast. In 30 minutes I was put on a stretcher and rushed out the door and into an ambulance. Off to a different hospital. I knew it would take a while, so I fell asleep, next thing I knew I was on a hospital bed with my mom. My favorite blanket was with me, but I didn’t know how it got there. Mason Coldsmith's story

Life at the hospital wasn’t bad. They had good food. I had lots of things to do, like watching movies and playing in the game room. The game room was awesome! I got to play video games with my brother and dad. I spent most of the time watching movies and TV though because I was so tired. The tests got me worried. Like if it was going to hurt. But when I got in there I wasn’t scared anymore. When I took a needle I always got a gift because I wasn’t scared. Everyone was really nice to me there. I even had to get blood through my needle because I was so weak. My mom told me it was Captain America’s blood. At the time, we lived in WA state and we were taken to an Army hospital. I was really lucky. I was excited to get out though and go home again.

It really doesn’t bother me a lot, but it’s a pain taking medicine at night. Especially when I’m really tired! But I’m turning it into a challenge! How many can I take at a time? I also like telling my stories about me being in the hospital. Sometimes I enjoy having colitis, but it also makes me worried about how this is going to affect my future.

Sometimes when I have a cramp I think of a creature in my stomach pressing a button when I have a cramp. The first time I had a needle I thought I would cry and scream but turns out it didn’t hurt at all. I was really brave. People are always making fun of me because I’m short and it makes me mad. I tell them why I’m so small and they understand. Usually people don’t ask because they don’t want to hurt my feelings, which, I respect. Sometimes I say to myself why did you give me this future, God? I mostly try to forget I have colitis and it sometimes works.

I can still play all the sports and do everything a normal kid can do. My favorite sports are soccer and basketball. School is no different either. I am on honor roll. I’m going to be in 4th grade this year, turning 10 years old in November, and I can’t wait to go back to school and see all my friends. I love school! My favorite subject is reading. My mom is a nurse and she helps me understand what colitis is. I try and read things in books and on the computer to find out more too. My doctor is really great about answering any questions I have also. He’s pretty cool!

When it comes to eating though – its hard. I try and eat, but I get full really fast. There are no foods I can’t eat, but I just can’t do it sometimes. I’m just not really hungry a lot. My favorite foods are peanut butter and jelly, chicken nuggets, pizza, my mom’s spaghetti and lasagna and of course, BACON!

So that comes to the end of the story of my colitis for now, signing off…Mason.

[Editor’s note: This story was written by Mason, with help from his Mom, and submitted to their IBD care team at New Hampshire Hospital for Children. Dr. Harohalli Shashidhar and Carole Rudman contacted ImproveCareNow on behalf of the family, who wanted to share Mason’s story widely with the hope that it would helpful to other patients.]

3 thoughts on “Life With Colitis: Mason’s Story

  1. Thanks for sharing your story, Mason! I was diagnosed with Colitis when I was 11 years old and I’ve had it for 15 years now. You’re so brave and strong! Keep it up!! I’m sure your story will help and inspire so many other kids going through the same thing 🙂

  2. Mason- I loved reading your story. This will be helpful to other patients and to the doctors and nurses and others that work in ImproveCareNow to help kids get better faster and live as well as they can with IBD. You are brave and strong.

  3. Mason, you are so awesome. I’m so impressed at how well you tell your story – I felt like I was right there with you. I also have ulcerative colitis, though I was 14 when I was diagnosed. I could relate to to a lot of what you wrote. Like you, I have sometimes tried to forget I have colitis, but I am so inspired to see you bravely using your voice to help other kids. It sounds like you could be that person to explain colitis to other kids newly diagnosed or without colitis, like your mom has done for you – I bet some are even reading this blog post and being helped by it! Although I don’t like my ulcerative colitis all the time, it helped me realize that I want to be a doctor to help other kids (and I’m now in medical school!). I hope you get a chance to attend Camp Oasis, if you haven’t already, and meet other kids with IBD! Camp is a really great and fun place. Above all, you deserve praise for sure for handling bullies so well. You might be small in size, but I can tell from reading this that your personality is mighty – and, as proven by superheroes again and again, your personality and experiences make you YOU so much more than what you look like or what you wear. Go you! (Also, yum bacon!)

Comment

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s